A-Z to Deafblindness is a UK site providing information about deafblindness and collating links and resources from around the Net.
CHARGE Syndrome is the most common cause of congenital deaf blindness
Deaf Blind International is an umbrella organisation of national deafblindness charities, though is also open to indiviudal membership. The site holds numerous useful articles and factsheets.
Deafblind UK is a national charity which provides a range of support services to deafblind adults and their carers.
The National Deaf Children's Society is a UK charity dedicated to providing support and advice for deaf children, their families and professionals.
The RNIB is the UK's largest charity concerned with visual impairment.
Sense is the largest UK charity for deafblind adults and children. A great site with much essential information.
Usher Syndrome information from Sense
Wikipedia Extract : View Full Article
Deafblindness is the condition of little or no useful sight and little or no useful hearing.
There are different degrees of vision loss and auditory loss within each individual, thus making the deafblind community unique with many types of deafblindness involved. Because of this diversity, each deafblind individual's needs regarding lifestyle, communication, education, and work need to be addressed based on their degree of dual-modality deprivation in order to improve their ability to live independently.
Some deafblind individuals view their condition as a part of their identity.
There are two overarching types of deafblindness:
Deafblind people communicate in many different ways as determined by the nature of their condition, the age of onset, and what resources are available to them.
For example, someone who grew up deaf and experienced vision loss later in life is likely to use a sign language (in a visually modified or tactile form). Others who grew up blind and later became deaf are more likely to use a tactile mode of spoken/written language.
Methods of communication include: