See also CHARGE

Deafblindess or dual sensory impairment affects around 24,000 people in the UK. Many deafblind people have limited use of hearing, sight or indeed both senses and therefore capabilities and support requirements vary markedly for each individual.

Sense is a specialist UK charity and their website is a mine of useful information and essential reading about deafblindness, including:

Useful Links


Sense is the largest UK charity for deafblind adults and children. A great site with much essential information.

A-Z to Deafblindness

A-Z to Deafblindness is a UK site providing information about deafblindness and collating links and resources from around the Net.

Deaf Blind International

Deaf Blind International is an umbrella organisation of national deafblindness charities, though is also open to indiviudal membership. The site holds numerous useful articles and factsheets.

Deafblind UK

Deafblind UK is a national charity which provides a range of support services to deafblind adults and their carers.

Usher Syndrome

Usher Syndrome information from Sense


The National Deaf Children's Society is a UK charity dedicated to providing support and advice for deaf children, their families and professionals.


The RNIB is the UK's largest charity concerned with visual impairment.

European Usher Website

Multi-language site collating information and research about Usher Syndrome

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