SEN Web Links : Tuberous Sclerosis (Complex) : SEN Teacher ~ Free teaching resources for Special Needs.

About Tuberous Sclerosis (Complex)	Recommended Links
Tuberous Sclerosis (TS or TSC) is a genetic disorder which affects around 1 in 7000 births. The disorder is so named because of benign calcifying tumours in the brain, though growths may also affect many other organs of the body. TSC varies greatly in the severity of manifestation in terms of both its health and developmental implications. Only around half of individuals affected are have learning difficulties which can range from mild to very severe. Around 3/4 of individuals affected develop epilepsy most commonly in early childhood. Around 1/4 of individuals have behavioural traits sometimes characterised in terms of Autistic Spectrum Disorder. See the links page-right for much more detailed information and resources. Back to the list of links	TSA (UK) The Tuberous Sclerosis Association (TSA) is a support and campaigning group formed by parents, doctors and affected individuals. Their website provides a great deal of useful information and includes a discussion forum covering a range of related topics. TS Alliance (US) The TS Alliance is a US based support and campaigning organisation which also funds medical research into the disorder. Their website provides an extensive library of research, links and information for several audiences including families, researchers and clinicians. TSI Tuberous Sclerosis International lists a host of Tuberous Sclerosis organisations in many countries and languages. TSC (Canada) TSC Canada is a support organisation with another useful website. TSC Canada also maintain a discussion mailing list for families and affected individuals.

About Tuberous Sclerosis (Complex)

Recommended Links

Tuberous Sclerosis (TS or TSC) is a genetic disorder which affects around 1 in 7000 births.

The disorder is so named because of benign calcifying tumours in the brain, though growths may also affect many other organs of the body.

TSC varies greatly in the severity of manifestation in terms of both its health and developmental implications.

Only around half of individuals affected are have learning difficulties which can range from mild to very severe.

Around 3/4 of individuals affected develop epilepsy most commonly in early childhood.

Around 1/4 of individuals have behavioural traits sometimes characterised in terms of Autistic Spectrum Disorder.

See the links page-right for much more detailed information and resources.

Back to the list of links

TSA (UK)
The Tuberous Sclerosis Association (TSA) is a support and campaigning group formed by parents, doctors and affected individuals. Their website provides a great deal of useful information and includes a discussion forum covering a range of related topics.
TS Alliance (US)
The TS Alliance is a US based support and campaigning organisation which also funds medical research into the disorder. Their website provides an extensive library of research, links and information for several audiences including families, researchers and clinicians.
TSI
Tuberous Sclerosis International lists a host of Tuberous Sclerosis organisations in many countries and languages.
TSC (Canada)
TSC Canada is a support organisation with another useful website. TSC Canada also maintain a discussion mailing list for families and affected individuals.