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SEN Web Links : CHARGE (Syndrome)

About CHARGE (Syndrome)

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CHARGE is a rare genetic condition affecting up to 1 in 10000 births. A variable complex of physical, cognitive and sensory impairments are involved.

The condition is named from the features which are commonly seen:

  • Coloboma - gap in the retina or iris

  • Heart Abnormalities

  • Atresia (Choanal) - complete nasal obstruction

  • Retardation - physical & developmental

  • Genital Abnormalities

  • Ear Abnormalities


Around two-thirds of individuals with CHARGE have dual sensory impairment and so in the UK, the charity Sense are an excellent and expert source of support and information for affected individuals.