SEN Web Links : Lowe Syndrome : SEN Teacher ~ Free teaching resources for Special Needs.

About Lowe Syndrome	Recommended Links
Lowe Syndrome (OCL Syndrome, Oculo-Cerebro-Renal Dystrophy) is a rare genetic condition in boys which affects eyes, kidneys and the brain. Lowe Syndrome is associated with mild to severe learning disabilities and speech delay. Children are born with cataracts and undergo surgery early in life to remove them. Lowe Syndrome is also associated with glaucoma and around 50% of individuals will require on-going treatment. Visual impairment is generally within the range that can be corrected by glasses and/or contact lenses. Around half of boys with Lowe Syndrome are affected by epilepsy. Physical difficulties include problems related to weak muscles, brittle bones and poor fine & gross-motor coordination. Behavioural and social problems akin to autistic spectrum disorder are frequent, if not general. Back to the list of links	Lowe Syndrome Association A US based international support organisation maintaining an excellent reference site on Lowe Syndrome. Lowe Syndrome Trust An energetic UK Charity providing support and information to families, individuals and professionals affected by Lowe Syndrome Educational Issues from LSA An article from the Lowe Syndrome Association summarising developmental and education issues for boys with Lowe Syndrome. OMIM Reference Clinical references on Lowe Syndrome from the OMIM database.

About Lowe Syndrome

Recommended Links

Lowe Syndrome (OCL Syndrome, Oculo-Cerebro-Renal Dystrophy) is a rare genetic condition in boys which affects eyes, kidneys and the brain.

Lowe Syndrome is associated with mild to severe learning disabilities and speech delay.

Children are born with cataracts and undergo surgery early in life to remove them. Lowe Syndrome is also associated with glaucoma and around 50% of individuals will require on-going treatment. Visual impairment is generally within the range that can be corrected by glasses and/or contact lenses.

Around half of boys with Lowe Syndrome are affected by epilepsy.

Physical difficulties include problems related to weak muscles, brittle bones and poor fine & gross-motor coordination.

Behavioural and social problems akin to autistic spectrum disorder are frequent, if not general.

Back to the list of links

Lowe Syndrome Association
A US based international support organisation maintaining an excellent reference site on Lowe Syndrome.
Lowe Syndrome Trust
An energetic UK Charity providing support and information to families, individuals and professionals affected by Lowe Syndrome
Educational Issues from LSA
An article from the Lowe Syndrome Association summarising developmental and education issues for boys with Lowe Syndrome.
OMIM Reference
Clinical references on Lowe Syndrome from the OMIM database.