SEN Web Links : Rett Syndrome : SEN Teacher ~ Free teaching resources for Special Needs.

About Rett Syndrome	Recommended Links
Rett Syndrome is a progressive neurological disorder which almost exclusively affects girls and up to 1 in 10000 births. The condition is generally diagnosed as a result of regression or deterioration in toddlerhood after a year or two of normal development. Rett Syndrome is a complex disorder sharing some symptoms of autism and cerebral palsy. Rett Syndrome is associated with growth retardation, severe to profound learning disabilities, significant communication impairment often alongside additional social and behavioural difficulties. Around half of children with Rett Syndrome are able to walk but gross-motor problems and involuntary movements are usual and gait is generally unsteady. Physical impairments such as loss of muscle tone and scoliosis often progress with age. Around half of people with Rett Syndrome (probably a lower incidence in young children) are affected by epilepsy. Back to the list of links	Rett Syndrome Association (UK) The RSAUK are a national support organisation providing advice to families, indiviudals and professionals affected by Rett Syndrome. International Rett Syndrome Association The IRSA is a US based support organisation for Rett Syndrome. Their site provides access to research and a large collection of articles and information sheets. Rett Syndrome Research Foundation The RSEF supports research into Rett Syndrome, their site holds summary details of research trials and also a good selection of other articles and information. Parent's Perspective Excellent home page from the mother of a child with Rett Syndrome including advice, information about the syndrome and an account of her daughter's progress and experiences year on year. European Rett Syndrome Sites A page linking to many Rett Syndrome support organisations throughout Europe.

About Rett Syndrome

Recommended Links

Rett Syndrome is a progressive neurological disorder which almost exclusively affects girls and up to 1 in 10000 births.

The condition is generally diagnosed as a result of regression or deterioration in toddlerhood after a year or two of normal development.

Rett Syndrome is a complex disorder sharing some symptoms of autism and cerebral palsy. Rett Syndrome is associated with growth retardation, severe to profound learning disabilities, significant communication impairment often alongside additional social and behavioural difficulties.

Around half of children with Rett Syndrome are able to walk but gross-motor problems and involuntary movements are usual and gait is generally unsteady. Physical impairments such as loss of muscle tone and scoliosis often progress with age.

Around half of people with Rett Syndrome (probably a lower incidence in young children) are affected by epilepsy.

Back to the list of links

Rett Syndrome Association (UK)
The RSAUK are a national support organisation providing advice to families, indiviudals and professionals affected by Rett Syndrome.
International Rett Syndrome Association
The IRSA is a US based support organisation for Rett Syndrome. Their site provides access to research and a large collection of articles and information sheets.
Rett Syndrome Research Foundation
The RSEF supports research into Rett Syndrome, their site holds summary details of research trials and also a good selection of other articles and information.
Parent's Perspective
Excellent home page from the mother of a child with Rett Syndrome including advice, information about the syndrome and an account of her daughter's progress and experiences year on year.
European Rett Syndrome Sites
A page linking to many Rett Syndrome support organisations throughout Europe.