About Prader-Willi Syndrome | Recommended Links |
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Prader-Willi syndrome is a genetic condition caused by a deletion/translocation in paternal chromosome 15 or more rarely a maternal disomy of chromosome 15. PSW affects up to 1:10000 births, though much lower incidence figures in the UK have been suggested by some researchers. Aquired Prader-Willi Syndrome is a symptomatically similar condition caused by brain injury rather than chromosome abnormality. PWS is associated with mild to severe learning disabilities. Prader-Willi syndrome is also associated with obesity as the condition causes a continual and excessive appetite; children experience the need for food - not just unusual desire or temptation to eat. Within strict dietry regimes and appropriately supportive environments children are able to maintain normal weights. This area is one in which schools and teachers new to the condition should seek guidance from experienced experts such as the PWSA page-right and work closely with parents or carers. Accessibility of the lunches and snacks of peers and their willingness to part with them should also be addressed. Physical impairments common with PWS include impaired gross-motor coordination, poor balance and generally weak muscles. Delayed emotional and social development are common but not general features of Prader-Willi Syndrome.
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SEN Web Links : Prader-Willi Syndrome
